Role domácí a preventivní léčby v současné péči o dětské hemofiliky // SOLEN

Pediatria pre prax 1/2003

Role domácí a preventivní léčby v současné péči o dětské hemofiliky

ROLE OF HOME AND PROPHYLACTIC TREATMENT IN CURRENT CARE OF CHILDREN SUFFERING FROM HAEMOPHILIA After a general introduction providing basic information about haemophilia, this article analyses principles and procedures of home treatment and necessary conditions for its practical realization. About 48% of paediatric haemophiliacs type A and 20% of paediatric haemophiliacs type B are treated with home treatment in the Czech Republic nowadays. The percentage of children on home treatment increases with severity of haemophilia. At present due to preventive treatment, even in severe haemophiliacs it is possible to avoid development of disabling haemophiliac arthropathy. The purpose of preventive substitution therapy, its different forms, indication and practical application are mentioned in the second part of the article. In the Czech Republic at present, 15,5% of haemophiliacs A and 20% of haemophiliacs B are treated in the preventive way. Similar to home treatment, the percentage of patients treated with preventive treatment also rises with the severity of haemophilia. Key words: haemophilia A/B, home treatment, substitution therapy, haemophiliac arthropathy, preventive treatment.